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Rank: Newbie  Groups: Registered
Joined: 3/2/2013 Posts: 8
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Hello everyone, my name is Wendy and I'm 44 years old, married to Adrian and we have a son called Lewis who will be 13 this month. I was diagnosed 17 years ago at the age of 27 so it's took me a long while to get here but better late than never!
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Hi Wendy, and a warm welcome to the forum, its a great place for ideas, help, reassurance and to know you are not on your own. You've lived with RA a long time, would be inteesting to hear your journey with it. I'm Sheila 58, diagnosed 5 years ago live with partner Rob, no children, one cat and a house that currently resembles Steptoe's yard. My RA is very nearly in remission at present,so they say! this was achieved through pure fluke when taking an anti cancer drug for an unrelated to RA condition, before that had been through, humira enbrel and rituximab, plus the usual that they give us. Hope to hear more from you Best wishes Sheila
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Wendy - and welcome to the forum. I'm Sylvia, 55 and was diagnosed May 2012. Last year, I visited the forum almost daily, for help and advice and general support. Since then I've progressed to being in remission (although I've got hand issues atm) and restarted work - part time - so I only get to visit once a week, but I still love to hear news of all the friends I've met here. I'm married to Andy, and have 4 teenage children. My youngest is also 13 - a girl called Georgie - very headstrong and definitely hitting "that age"; then there's Olivia - 15 and struggling through GCSEs; Kathryn is 18 and currently in Canada (back in April - can't wait!!!!!) and finally Alastair who's 19 and at uni. Hope to hear more from you - best wishes - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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 Hello Wendy A warm welcome to you. May I ask what medication you are on? I had ra when I was 34 years young, I'm 40 now. So much has happened in the last year, first ra op last June for bunion/hammer toes. Last week first replacement for knee. The lovely people on the forum pool together with their vast experience and knowledge - I joined last May and found sharing highs and lows has given me confidence and understand I'm not alone with ra. I'm married with a 6 year old and like to make the most of being out and about visiting lots of places! Looking forward to getting to know you. Jane Xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello Wendy! I'm jenni, I am 37 now and have got a husband Richard and 2 adoptive teens and a bit of a surprise who is now 5. The rheumatoid has decided to be aggressive on me and gone for the severe side of things I visit this forum a few times a week and like to have a bit of banter and a giggle I wondering what your interests are Wendy? I've always been creative and having a go at sewing is my latest thing. I got a flash Sewing machine last August bank holiday and have fallen in love! Silly I know! Like you, I have had the ra a while now, I was about 20/21 when diagnosed So the knowing on the body takes its toll and I've got the second knee due for replacement this year. Anyway, enough waffle from me- welcome again :-) how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Wendy, and welcome to the forum. My word, you have had RA a very long time - it must have been tough getting that diagnosis at such a young age. I was 55 when diagnosed, and I`m now 62, and currently taking humira and a variety of other "bits and bobs." I`m married to Nick, ( for 41 years! ) and we have two sons and two gorgeous little grandsons. Do keep posting. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Wendy, welcome aboard. i hate to hear it when people are diagnosed at such a young age, i can't imagine the journey you've been through. do let us know how you are and what meds you are on. i was diagnosed nearly three years ago now, took quite a while to get my RA under control ( about 18 months ) and now doing well these past 18 months. i'm almost 60 eeeekk  with a grown up daughter and been married 40 years. Suzanne
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Rank: Advanced Member
Groups: Registered
Joined: 4/20/2010 Posts: 153 Location: Kent
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Hi Wendy Big welcome to the forum. Everyone is very supportive on here. best wishes Lou xx I love people who can make you smile even when you do not feel like smiling. x
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Rank: Member  Groups: Registered
Joined: 3/4/2013 Posts: 14
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Hi Wendy I am a newbie too, looking forward to getting to know everyone
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Hello Wendy, and welcome to the forum. I'm Naomi, aged 48 and i have a partner Nick, a son Theo (24) who lives and works in Taiwan. I have 4 hens and I treat them as my pets. I've had full blown RA for nearly 2 years so am just a novice compared to you. I look forward to getting to know you better on here. Best wishes xx
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Rank: Newbie  Groups: Registered
Joined: 3/2/2013 Posts: 8
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Hi everyone and thank you so much for the very warm welcome. My journey so far has been emotional at times. Even though I've had RA for 17 years, it has taken me a long time to come to terms with it. I got off to a bad start when first diagnosed because my employers were not supportive at all. To cut a long story short, I was very ill and had time off which did not go down to well. I was scared, bewildered and vulnerable and gosh did they take advantage of that! You probably detect that I'm still very bitter about it all. (Note to self: Let it go Wendy!) In the end, with the full support of my wonderful husband, I decided to call it a day and concentrate on getting better. I would like to think that this wouldn't happen now but who knows? Maybe some of you have horror stories of evil employers??? Over the years I've been on a few DMARD's, an Anti TNF and a Biologic which have been either unsuccessful or I've reacted badly to them. These include, Sulphasalazine, Gold Injections, Methotrexate tablets & injections, Leflunomide, Etanercept Injections and now I'm currently on Rituximab infusions but sadly that seems to be iffy now. One thing I do struggle with as well as the pain is the fatigue, although I am getting much better at pacing myself now. Also, I am not ashamed to say how much this wretched disease has affected my mood over the years and chipped away at my confidence. However, I had CBT last year which really helped and I am currently on a self management course for people with long term conditions. I also started doing voluntary work for Arthritis Research UK last week. Just a couple of hours a week but it's so good to give something back. Anyhow, I seem to be waffling so I'll leave it there for now! Thanks again for your welcome messages. Take care, Wendy X
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Wendy - you'll find similar experiences here too about unsympathetic employers, but as you say - let it go - there is always light ahead. It's great that you're now with Arthritis Research UK - also a very valuable charity. Have you seen that NRAS is looking for trustees and other help! I hear you about the fatigue and having to pace your daily life - we've got a great metaphor that we laugh about called our Spoon Theory. Every day we start with a fixed number of spoons, and everything we do uses a spoon, and when the spoons are gone - they're, well, GONE. So use your spoons with care... (There's a much better telling than that - Naomi have you still got the link?) Very best wishes - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hello to Suzanne - haven't talked to you in a while - hope you're planning a good do for the big six-0!!!  Love and hugs - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Newbie  Groups: Registered
Joined: 3/2/2013 Posts: 8
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Thanks Sylvia, I have heard and read about the spoon theory before. I could have done with a few extra today :) Regarding charity work, I am also hosting my very first NRAS Tea party this summer and very much looking forward to it. Best wishes, Wendy X
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Wendy - that's brilliant about the tea party! It's such a nice idea to share tea and cakes and raise money and awareness for such a worthwhile cause. I've been thinking about doing one at work - but somehow just haven't got around to it - you're an inspiration. Let us know what you plan to do cakeswise! - Best wishes - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Newbie  Groups: Registered
Joined: 3/2/2013 Posts: 8
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Thanks Sylvia, I will do! Wendy X
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2013 Posts: 144 Location: Dumfries
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Hi Wendy
I was just diagnosed 3 weeks ago age 40. I am married with two wee boys of 7 and 9. I am not surprised you feel bitter about the way your work treated you but am glad you have got out as I am a firm believer that your mental state can have a knock-on effect on what is going on in the body. I have been started on methotrexate, hydroxychloroquine & prednisolone. The fatigue is one symptom which really annoys me especially with having the boys but as you say you need to learn to pace yourself.
Take care and speck soon.
LisaMcB xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2013 Posts: 144 Location: Dumfries
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Hi Wendy
I was just diagnosed 3 weeks ago age 40. I am married with two wee boys of 7 and 9. I am not surprised you feel bitter about the way your work treated you but am glad you have got out as I am a firm believer that your mental state can have a knock-on effect on what is going on in the body. I have been started on methotrexate, hydroxychloroquine & prednisolone. The fatigue is one symptom which really annoys me especially with having the boys but as you say you need to learn to pace yourself.
Take care and speck soon.
LisaMcB xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Hi Wendy, I'm Fiona, nearly 56 now and diagnosed at 38. I have 3 grown up kids in their 30's and a 12 year old Granddaughter. (Well she is 12 tomorrow!) Well done for providing the Tea Party. I am currently writing quite a lot under the Benefits section because I feel so very upset about the changes which effect R.A sufferers and the horrible experiences I have had with ATOS the French I.T. company awarded the Government contract to move all Benefit claiments over to E.S.A. So if you ever want to read some cross rantings take a look! I have Blogged on here too. Kind regards, Fiona
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Rank: Newbie  Groups: Registered
Joined: 3/2/2013 Posts: 8
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Hi Lisa and Fiona, thanks for the welcome. It's lovely to meet other RA sufferers although I wish none of us had this terrible disease. I look forward to getting to know you all.
Best wishes,
Wendy x
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